Despite being so small, Elipe Leonie inspires the entire world with her courage and love of life. November 14, 2019 saw the birth of Elipe ...
Despite being so small, Elipe Leonie inspires the entire world with her courage and love of life. November 14, 2019 saw the birth of Elipe Leonie. She weighed 1200 grams and was 38 centimeters long. Neonatal Progeria was identified as Elipe's condition after she was born.
A genetic disorder that causes children to age rapidly, Progeria is a very rare disease. It usually occurs after the age of two and is also known as "Hutchinson-Gilford syndrome". But Elipe's neonatal Progeria became apparent early in her life.
Elipe's mother documented the journey from pregnancy to her baby's final moments on her Instagram page. Reading it, you feel a terrible emotion. The heart is abnormally large and the belly is much smaller than normal. She has had many ultrasounds. She refused the doctor's offer to perform amniocentesis to test. She was admitted to hospital during her pregnancy at 28 weeks. Elipe never seemed to age. I felt very anxious and restless when Elipe's heart stopped briefly during an ultrasound exam before quickly starting to beat again.
And as soon as it happened, the doctor decided to perform an emergency cesarean section for Elipe. On November 14, at 4.26pm, Elipe was born. She weighed 1200 grams and was 38 centimeters long. Elipe is physically limited and unable to grow. She also has digestive and heart muscle problems. Even after extensive research, doctors were unable to determine the cause of Elipe's genetic abnormality. All the genetic tests I participated in, along with her father, were unable to explain how my child could have developed a rare disease.
Children with Progeria usually live to about 13 years old. Others may survive longer, perhaps into their 20s, while others may move on. Elipe finds it very difficult to eat and drink to sustain her life because she cannot do so independently like other children. Since she was born, Elipe has primarily been fed through a tube.
“I guarantee you, my dear Elipe, that there is a better world outside the hospital,” the doctor told Elipe during his stay in the hospital. Elipe's mother spoke to her. Finally, that promise has been kept.
Mother and daughter were finally released from the hospital on February 21, 2020, after 100 days in the facility. Elipe's mother was ecstatic, joyful and satisfied. An unimaginable mix of excitement and slight insecurity. The daughter could finally see her surroundings and return to her beloved family.
He had already made all the predictions about his daughter Elipe's lifespan, so he used the remaining time to give Elipe the happiest and most beautiful moments. He always incorporated laughter, which is the best remedy, into her life. The most precious treasure for healing the body is love.
However, Elipe lost the chance to accompany his mother in her battle against this terrible disease. She although she celebrated her first birthday on March 7, 2021, just over 3 months after she was born. The relationship between Elipe and her mother, Michelle, made them have fun to the fullest, despite the fact that this path has not always been easy.
Reveal a mother's boundless love for you and express gratitude to the child for coming into this world. We miss you dearly. I adore you immensely. You are our guard.
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